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Please note that these workshops run concurrently and so only one option may be chosen.

Workshop 1: Public and Patient Involvement – Doing excellent PPI

Patients and members of the public are playing an increasingly important role in the research landscape. As PPI (Public and Patient Involvement) contributors, they are bringing their ‘lived experience’ to how research is developed, designed, delivered and disseminated.

This workshop will:

1) provide an overview of how PPI can be incorporated across the research cycle;

2) consider how to begin and to maintain positive PPI relationships over the long-term;

3) introduce a values and principles framework to guide PPI activity and drive quality in your activities.

Cost: €75 (reduced price of €65 if booked in conjunction with the main conference)

Prof Mary McCarron, Director Trinity Centre for Ageing and Intellectual Disability
Clodagh O'Donovan, Programme Manager for Trinity's PPI Ignite Office

Prof Mary McCarron

Prof Mary McCarron is the founder and Principal Investigator for IDS-TILDA, the longitudinal comparative study on ageing in persons with intellectual disability including persons with Down syndrome, a global first. IDS-TILDA increases understanding about how lives and chronic conditions change over time for this population, drives changes on healthcare practice and national health policy. Professor McCarron has also led a longitudinal cohort study of dementia in people with Down syndrome spanning over 25 years, which has led to the development of Ireland's first dedicated National Memory Service for people with an intellectual disability, where she serves as Executive Director. A champion of patient and public involvement in research (PPI) McCarron is site lead for Trinity on the PPI Ignite Network at Trinity College Dublin, the national network among universities in Ireland funded by the HRB. She received the inaugural HRB Impact Award. She is co-applicant on the HRB's Clinical Research Network Awards for Dementia Trials Ireland (DTI), a world-class clinical trials' infrastructure to support and grow dementia intervention studies. In addition, she is the Irish Lead on the H21 Consortium working on Clinical and trial outcome measures for dementia in individuals with Down Syndrome.

Clodagh O'Donovan

Clodagh O'Donovan is the Programme Manager for Trinity's PPI Ignite Office, promoting high quality public and patient involvement (PPI) in health-related research. Prior to this role, Clodagh worked for health research charities including the All Ireland Institute of Hospice and Palliative Care (AIIHPC), and Health Research Charities Ireland (HRCI). She has a background in communication, community development, and public participation networks, and has worked extensively in film, television and digital media as an audio engineer, producer, and post-production manager. She has an MSc in Interactive Digital Systems from Trinity College Dublin. Within the National PPI Network, the Trinity PPI Ignite Office is leading out on the process of considering how to improve the quality of PPI across the country, resulting in the development of a PPI Values and Principles Framework and the Framework for Quality Improvement in PPI. It also has a focus on the development of a culture of capturing the impact of PPI-influenced research. The office has a Trinity-focused programme to celebrate and support PPI activity across the institution. Contact for support with the PPI element of your research.

Workshop 2: Sexual safety in approved and designated centres

This workshop will discuss the critical elements of promoting sexual safety in approved and designated centres. It will apply a human rights focus on supporting and safeguarding service users, consider the relevant legislation and policy as well and navigate responses within a person-centred and trauma-informed care context. The workshop will be of interest to all professionals who work with service users in approved and designated centres.

Cost: €75 (reduced price of €65 if booked in conjunction with the main conference)

Prof Amanda Phelan, Professor in Ageing and Community Nursing, School of Nursing and Midwifery, Trinity College Dublin
Dr. J.P. Nolan, Head of Quality & Patient Safety, Community Operations, Health Service Executive

Prof Amanda Phelan

Amanda Phelan is a Professor in Ageing and Community Nursing in the School of Nursing & Midwifery, Trinity College Dublin since March 2020. Prior to this appointment, she was an Associate Professor in Nursing at the School of Nursing, Midwifery & Health Systems, University College Dublin (UCD). At UCD, Amanda was the Director of Gerontological Programmes and Deputy Director of the National Centre for the Protection of Older People. In TCD, Amanda leads Ireland’s only MSc level multi-disciplinary programme on adult safeguarding and has teaching areas in programmes related to community health, dementia, gerontological nursing and advanced practice. Amanda has a research interest in safeguarding vulnerable populations (particularly related to older people), older person care, missed care, public health and community nursing. Amanda is Vice President of the All-Ireland Gerontological Nurses’ Association and a member of the Board of Directors in Third Age and Safeguarding Ireland. Amanda has published two edited books on the topic of elder abuse and her third co-edited book, is on the area of gerontology. She is currently working on a book on community-centred care. Amanda has numerous peer-reviewed publications and sits on the editorial board of the Journal of Elder Abuse & Neglect and the International Journal of Older People Nursing.

Dr J.P.Nolan

Dr J.P. Nolan is a patient safety expert who has worked in the private, defence and public sectors in Europe, the UK, North America and a number of developing countries. With a background as a nurse he went on to become Head of Emergency & Critical Care and later Head of Nursing at the Royal College of Nursing in the UK. While in the UK JP lead a range of national patient safety programmes when working at the NHS National Patient Safety Agency and has also worked at WHO Patient Safety in Geneva. JP has served on military operations in a range of conflict and disaster zones, acting as Head of Governance and later contributing to the British Medical Association's ethical guidelines for military medicine. He has a keen interest in elite sport and was the Medical Services Manager for the London 2012 Olympic Games. JP's research interests are diverse but linked by a common aim to prevent avoidable harm in health and social care. This currently includes work to improve sexual safety in HSE services. His past research includes work on suicide prevention, bioethics and the management of disputed care decisions. Safeguarding has been a particular area of interest for JP since he first became a responsible person for safeguarding during his time in the NHS.

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