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Improving the Health and Wellbeing of Women, Children and Families

Children & Families Participation in Healthcare Decision-making

This theme includes research projects which focus on understanding and promoting children and families’ participation in shared decision making. The aim is to ensure  that children and families are treated with respect, dignity and courtesy and accorded their rights as citizens.

Current projects

  • Investigation of parents’ informational needs for their child’s transition to adult healthcare services. (PEACH-CF). Principal Investigator:  Prof Imelda Coyne
  • An exploration of the experiences, concerns and needs of transgender identified children and young people. Higgins A (PI), Walsh S, Doyle L, Keogh B, McCann E, Prof Imelda Coyne

Completed projects

  • Children, parents and nurses: A qualitative study of their experiences of participation in hospital care in Ireland. Principal Investigator:  Prof Imelda Coyne
  • Interventions for promoting participation in shared decision-making for children with cancer. Principal Investigator:  Prof Imelda Coyne
  • Investigation of children’s participation in decision-making in healthcare: Children, parents and healthcare professionals’ perspectives. Principal Investigator:  Prof Imelda Coyne
  • Children with cancer: Children, parents, and health professionals' perspectives on children's participation in shared decision-making. Principal Investigator:  Prof Imelda Coyne
  • Investigation of children's experiences of participation in consultation and decision making within the Irish healthcare setting. PI: making for children with cystic fibrosis. Postdoctoral Cochrane Fellowship 2016-2018 Principal Investigator:  Prof Imelda Coyne
  • Exploring the constituents of an effective transition of a child with complex technological healthcare needs from hospital to home Prof. Maria Brenner.

Current research students

  • Helen Malone. Systematic Review: Interventions for promoting participation in shared decision-making for children with cystic fibrosis. Postdoctoral Cochrane Fellowship 2016-2018 Supervisor: Prof Imelda Coyne
  • Anna Stålberg. Young children’s meaning of participation in healthcare situations when using an Interactive Communication Tool. Mälardalen University, Sweden Principal Supervisor: Söderbäck M and Sandberg A, Larsson T. (Visiting International Student) Host: Prof Imelda Coyne
  • Grainne Dowdall. Developing an information resource for children with an Autism Spectrum Disorder attending the Emergency Department. Supervisor: Prof Imelda Coyne
  • Eilis Hayes. Hearing and listening to children's experiences of self harm and suicidal behaviour within the framework of their life stories. Co- Supervisor: Prof Imelda Coyne

Completed research student theses

  • Maria Harder. 2011 Pre-school children’s expressions of engagement in primary child health care. Mälardalen University, Sweden Principal Supervisor: Prof. M Soderback and  Prof. K Christensson, Karolinska Institute. (Visiting International Student) Host: Prof Imelda Coyne
  • Aislinn Amory 2010 Exploring parents' communication and information sharing with their child who has cancer. Principal Supervisor: Prof Imelda Coyne